Family of Alton boy, 5, with terminal brain disease focused on m - KMOV.com

Family of Alton boy, 5, with terminal brain disease focused on making memories

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ALTON (KMOV) – Like most little boys, Hayden Brown loves cars and superheroes. But unlike most boys his age, he is fighting a terminal brain disease.

“It’s basically causing everything to go backwards. Walking, talking, possibly losing vision, everything you think of and take for granted, he’s losing,” said Jonathan Brown, Hayden's father.

Last month Hayden was diagnosed with Metavhromatic Leukodystrophy and now his family is doing everything they can to make memories while they can.

On Sunday, it was a car show and cruise for the 5-year-old Jerseyville boy.

With a little help from social media, hundreds of friends and strangers came from all over ready to roll. The parking lot was filled with cars. The boy was showered with hugs and hot rods.

His family hopes to make the best of the time they have left and they’re not asking for money, they’re asking for experiences.

“If you have an excavator, a bobcat, an 18 wheeler, an airplane, anything you have, I want to fill my son’s life with memories,” explained Brown.

Through social media they’re connecting with people online and working to give Hayden those memories.

While Batman and Superman might not have been in Alton on Sunday, there was no shortage of superheroes. Although, Hayden’s mom says he’d like to meet those guys as well.

“He’d love to go in a helicopter,” Kaci Eberlin, said Hayden’s mom. “And to meet a superhero.”

For more information on how you can get involved, visit Hayden Brown's Facebook Page.

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