Granite City mother says terminally ill son lost medical coverage

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by Matt Sczesny / News 4

KMOV.com

Posted on April 24, 2014 at 10:22 PM

Updated Thursday, Apr 24 at 11:23 PM

(KMOV.com) - A Metro East mom says the state of Illinois has suddenly dropped Medicaid coverage for her seriously ill 4-year-old-son.

Kristin Willumat of Granite City said state medical coverage for her son stopped on March 31st without any reason. Her son Micah has fought the genetic disease, PDH since birth.  It’s a condition that stores too much lactic acid in the body to the point where it attacks vital organs.

Willumat said her son goes to St. Louis Children’s Hospital every month for $1,900 worth of feeding tubes and equipment to keep him alive. The state has not stopped coverage for Willumat or her three other children, all of whom are healthy.

"How can I get the medical card but not my son who's fighting for his life?” Willumat told News 4.

She said she is still trying to get answers from state health officials, but so far there’s been no answer.

“I went to the public aid office and they told me they didn't know why, and they told me to reapply and it could take 28 days and I still haven't heard anything yet."

A spokesperson for the Illinois Department of Healthcare and Family Services told News 4 they are looking into the matter.

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